Lyman Universe

Since this day only comes around once every 4 years I couldn’t pass up the opportunity to post something and catch everyone up on the latest happenings in our little universe. It’s been a little while since the last post and plenty to share. A few funny moments (with kids funny moments are plentiful), updates on Maddie, and a quick peak at one of my hobbies!

In the last post Carrie mentioned the Fedex doorbell ditcher… A few weeks later, this was a about a week or so ago, Mya saw the UPS truck stop in front of the house and the UPS guy start for the door. Well she wasn’t going to have him get the best of her this time. So she wait by the door and then just before the UPS guy got to the door Continue Reading »

We had three appointments last Thursday, December 20th at Primary Children’s Hospital. We met with Dr. Alan Rope, Maddie’s geneticist, Dr. Parks, her ENT, a speech pathologist, and her Opthamologist. Being as confused as we are about all the different things that the doctors are telling us I thought it would be great to include a little Genetics 101 with this update.

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So last Friday we had an appointment with Maddie’s Audiologist here in Bountiful. We had been to see him twice and performed two audiograms. We also saw another audiologist in Salt Lake City for a second opinion. As many of you know the results from those 3 different audiograms showed that Madalynn had a significant hearing improvement from what she had only a few months previously. However, things are always changing…

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We took Madie to see her Geneticist at Primary Children’s Medical Center. His name is Alan Rope and he is awesome. He is very knowledgable and he takes so much time to get to know Madalynn and thoroghly answer any questions we have. Madie has a duplication of Chromosome 3q. More testing is needed to specifically see where her chromosomal imbalance lies. A specific disease may be identified or it may turn out that she has a rare form of a genetic disorder that has not been studied much due to its rarity or it not being documented. Mike and I may need to have our chromosomes tested as well to determine how much genetics plays a role in Madie’s unique and cute personality. When we have more results we will hopefully be able to determine what her future might bring.
Dr. Rope also found a heart murmer in Madie. Sixty percent of even “normal” children have heart murmers and don’t need any reparations. However, fifty percent of kids with a genetic disorder have some kind of heart defect. It has not been detected before in Madalynn, but I brought it up to Dr. Rope and he heard it. She is scheduled for an Ecocardiogram on August 10th at PCMC. We plan to be there all day. We would appreciate all prayers and fasting on that day…(Madie will actually have to be fasting too).
Madie also had a check-up with her Opthalmologist, Dr. Scott Larsen, last week and he is impressed with how good her eyes look. Her crossed eye is straightening out well. She does pretty well at keeping her glasses on.
Feel free to call or email us if you have any questions or anything you want to share. Madalynn is doing very well and is learning so much. We are very proud of her and happy for her.
We love you all and thank you for your continual love and support. Take care. -Mike and Carrie