Since this day only comes around once every 4 years I couldn’t pass up the opportunity to post something and catch everyone up on the latest happenings in our little universe. It’s been a little while since the last post and plenty to share. A few funny moments (with kids funny moments are plentiful), updates […]
Tag Archives: maddie
Madalynn – Genetics 101
We had three appointments last Thursday, December 20th at Primary Children’s Hospital. We met with Dr. Alan Rope, Maddie’s geneticist, Dr. Parks, her ENT, a speech pathologist, and her Opthamologist. Being as confused as we are about all the different things that the doctors are telling us I thought it would be great to include […]
Variable hearing… What a concept!
So last Friday we had an appointment with Maddie’s Audiologist here in Bountiful. We had been to see him twice and performed two audiograms. We also saw another audiologist in Salt Lake City for a second opinion. As many of you know the results from those 3 different audiograms showed that Madalynn had a significant […]
The Latest with Maddie
We took Madie to see her Geneticist at Primary Children’s Medical Center. His name is Alan Rope and he is awesome. He is very knowledgable and he takes so much time to get to know Madalynn and thoroghly answer any questions we have. Madie has a duplication of Chromosome 3q. More testing is needed to […]